Privacy Policy

At EDS, we believe in being open and transparent about how we work. This Privacy Notice explains how we manage your information, how it is shared, and why it is important to us. In summary, we will always tell you how we use your data and we’ll use it to ensure your treatment is appropriate, bespoke and effective.

At EDS, we are committed to protecting your privacy in accordance with the current Data Protection Legislation.

EDS is a confidential service. At your initial assessment, you will be asked to sign a consent form (terms and conditions), enabling us to contact your GP or other medical professional should a member of EDS believe you are at risk of harming yourself or others. This will be explained to you further at your initial assessment.

This notice sets out the basis on which we will process any personal data that we may collect from you, or you provide to us.

Who is responsible for your data?

For the purposes of the legislation, the Data Controller in relation to any personal data we receive which relates to you, is EDS. You are also responsible for keeping your information (like contact details) up-to-date so please do let us know if anything changes. 

What Personal Data do we collect about you?

Personal Data means any information that relates to you and allows us to identify you, either directly or in combination with other information that we may hold. Your personal data is likely to include your name, contact details, date of birth and information relating to your treatment.

We collect some personal data from you, for example when we book an initial appointment with you and during treatment. If you enquire and provide personal information on behalf of someone else, you must have their consent to use their personal information.

We may collect and process the following categories of information about you:

Details you give us When we use your details

Your details to make an enquiry:

  • Name
  • Email address
  • Telephone number
  • Postcode
  • Any other information you choose to provide

When you make an enquiry via our website contact form.

When you email or call one of us directly to enquire.

The communications you exchange with us:

  • Calls/messages
  • Emails
  • Letters

When you contact one of us or we contact you.

Additional information to organise an appointment:

  • D.O.B
  • Full address

When we contact you to organize an initial assessment.

Information for invoicing:

  • Full address
  • Email address

When you have your first appointment with us.

Your posts and messages on social media directed to us

When you choose to interact with us on social media.

Your feedback

When you respond to our requests for feedback or participate in surveys.

In the course of providing services to you, we will collect information that could reveal your racial or ethnic origin, physical or mental health and other very personal information. This information is considered ‘sensitive personal data’. We only collect this information where you have given your explicit consent, it is necessary, or you have deliberately made it public. This would be collected solely to inform your treatment plan.

By providing any sensitive personal data you explicitly agree that we may collect and use it to provide our services and in accordance with this Privacy Notice. If you do not allow us to process this sensitive personal data, this will mean we are unable to provide all or parts of the services you have requested from us.

Request Rectification

If you feel that our information is incomplete or erroneous, you should inform your therapist who will update your records accordingly. This may be because you have moved house, or a professional is no longer involved. We would also endeavor, where reasonable, to notify anyone whom we had shared the rectified information with that it had been updated.

Request Erasure

If information is no longer relevant it can be erased. However, if there are legal grounds for us to keep it we must abide by this. Typically, anything in medical notes must be kept in its entirety for the duration of treatment and until the post-treatment retention period is complete. To request erasure of some or all your data, please contact us.

Request to Restrict Processing

A restriction on processing would mean that we can keep your data but you wanted to restrict who could access and use it unless legally we had to. We will endeavor to provide you this within one month of receipt of the request. Occasionally it may take us longer than a month. In this case, we will notify you and keep you updated. To request a restriction on your personal data, please contact us.

Request Data Portability

You may request for your data to be transferred to another therapist. As with Access Requests, due to legal reasons we will need to redact certain parts and retain a copy for ourselves. To request your data to be transferred to a third party, please contact us.

Lodge a Complaint

If you were unhappy with the way we were processing your data, then please contact us.

Updates to Our Privacy Notice

We may make changes to this Privacy Notice from time to time. We will update the Privacy Policy and we will publish on our website any new version of this Notice.